Survival Day #17 – Year of Challenge

The 17th anniversary of the day that forever altered the course of my life occurred this past weekend, on Saturday, October 22nd… Time has wrapped around again to the Survival Day being on the same day of the week. It was a Saturday when the accident happened, after a long stretch of workdays, looking forward to a Halloween party and a few days of rest. Little did I know that I was about to take a six-week nap…by this date, October 26th, in 2005, I was already asleep, experiencing another world that would fill my mind with memories from that time that did not happen…at least not on this plane of existence. This caused a great deal of confusion as I regained both consciousness and cognitive acuity.

To the best of my knowledge, I’ve never allowed so many days to pass between a Survival Day and an anniversary blog update. This has been a challenge for me this year, due to many things, none of which really have much, or anything to do with the loss of my legs. Typically, I prefer to spend the anniversary in seclusion for as much of the day as possible. This gives me time to reflect, to acknowledge how time has marched forward from that day that became a new measurement of time for myself and those closest to me.

For those who don’t know, during my commute home that night, a sixteen-year-old driver made a mistake behind the wheel of another car. I had the right of way and swerved to avoid the collision, but the other driver sped faster into the intersection instead of hitting their brakes. After a heroic, divinely inspired rescue effort by normal people who didn’t witness the accident but were traveling the same dark county road and risked their lives to free me from the twisted burning wreckage of my Jeep Wrangler, I was Life-lined to Methodist Hospital in Indianapolis, where I was placed into a medically induced coma. About 6 weeks later, I awoke to find that, among other injuries, both legs had been amputated from above the knee due to severe burns sustained in the accident.

It was a tragic event, more than a lifetime’s worth of physical, emotional, and mental trauma sustained in what seemed like an instant. It was also a miraculous event, in that I survived. That miracle took place over the course of weeks and was brought about through the hands of my rescuers, my first responders, my ambulance & LifeLine crews, my medical teams at both Methodist Hospital and the Richard M. Fairbanks Burn Unit at what was then Wishard Hospital (now at Eskenazi Hospital), and my tissue donors. I recognize that I had a role to play in that as well, as did all of the people who focused their love, energy, prayers, spiritual strength, and hope on my survival.

As I said, I prefer to spend my Survival Day in seclusion; this year that was not possible. Sadly, on this anniversary, my family was gathered to celebrate the life of my cousin Susy’s husband John. He was the best of men with the kindest of souls. Cancer, a thing I fear even more than sixteen-year-old drivers, took him from us…less than a year after claiming their son Chris. With all I have experienced, I have no idea how to console John’s family with this loss. I know that both John and Chris live on in their own spiritual journeys and are part of the divine energy that permeates this universe, thus closer to us than they ever could be in their physical forms, but that does nothing to make up for their tangible absence in this physical realm. Their absence is felt, they are loved, and they are truly missed.

John and my cousin Chris were among those who focused on my survival seventeen years ago. They were among those who gave me spiritual strength when my body clung to life…I was told there was a point when my heart was the only organ in my body that was functioning without assistance. Over the past 17 years, I have contemplated what I experienced while my body was in that state, and I know that for a time I walked on the other side of the veil. I’ve been where they are now, and a part of me will be happy to return there when the time comes.

I am lucky to be alive and am grateful for that every day, though some days it is easier to be aware of that than others. I am lucky to experience each new day and as each year has passed, I find myself amazed at what has transpired. I think back on the progression from barely being able to sit up in bed, to being discharged from the hospital to mom & dad’s house at a point where their relatively new next-door neighbor had to help carry me upstairs to bed each night, to living in my own home again… John and Chris helped modify my home by personally installing a wood laminate floor so my wheelchair could move through the house unencumbered by carpet; John also helped build a deck and pergola in my back yard so that I could access and enjoy my outdoor space… to learning how to walk on three different sets of prosthetic legs, to becoming a husband and step-father, to the point in time that the seventeenth Survival Day has passed. The challenges that I have taken on this year, I would never have contemplated attempting even a year ago.

This has been a year of challenges. Not that every year isn’t full of challenges but, somehow, the time between the last Survival Day and this past Saturday has felt exceptionally full. Some challenges have been bad…two rounds of covid, just to name a few…and many have been good. I could take this in a dark direction but would rather focus on some of the positive challenges that I have faced with my family and friends at my side.

This past year I personally added a hardwood floor in our entryway, with the help of a friend…

I began practicing martial arts again, and modifying martial art forms, “Katas,” for both the wheelchair and prosthetics with crutches…

My father and I added a vinyl plank floor in our dining room…

The whole family flew west to Bellingham, WA for my uncle’s finale year as Artistic Director of the Bellingham Festival of music. While there, Irena and I went whale watching in a tandem open water kayak (has a rudder that Irena had to manage with her feet) and attempted to circumnavigate one of the San Juan Islands. (Currents were too strong for us to make good time so, our guide had us turn around).

The trip west finally presented the opportunity to introduce my beloved wife, Irena, to my aunt Jean. Aunt Jean lives on a remote and relatively inaccessible island in the San Jaun’s. My sister Sarah and niece Madeline made the journey with us. Her home is one of the most beautiful places that I’ve ever seen. To get there, you have to take a water taxi, then ride in her SUV as she drives up a steep gravel road to the highest point on the island, where she has a view of the Cascades, the Olympics, and Mt. Rainier (on a clear day).

The next day we drove to the top of Mt. Baker, which is the tallest mountain in the Cascades. I walked out to some places that I should not have. The view was worth it.

We returned home and I continued with a summer long project of turning over and rearranging all of the paver stones in our back yard to both create a new patio & firepit area, and to put landscaping fabric underneath the pavers. (I’m getting too old to weed whack from a wheelchair multiple times a year). After completing the paver/patio/firepit project, I designed a pergola to go over the deck of our “new” house. (We moved here five years ago, from the house that John and Chris helped modify…I’m now doing the things that they helped me accomplish all those years ago).

Friends and family helped me build the pergola, and I spent the day after my Survival Day adding the finishing touches. Tonight, I’ve enjoyed taking the time to contemplate my continuing journey, sitting underneath the lattice in a space that would not exist, had I not survived 17 years ago…and every day since, grateful for the challenges that have brought me through this Survival Day and into my new year.

Disabilities & Conditions of Aging Network, September ’22

On Thursday, September 22nd, 2022, the Disabilities & Conditions of Aging Network in central Indiana met for its fourth meeting, hosted by Advocates Personal Care. With 22 attendees, the network continues to grow! The goal of the Disabilities & Conditions of Aging Network is for people and organizations in the Disability Community to regularly connect, engage, celebrate, and support each other’s efforts to empower people who are living with disabilities or conditions of aging in Indianapolis, central Indiana, and beyond. With a loose agenda, we promote introductions and organic conversation…

The October meeting of the network will be held in-person to allow an opportunity to share physical Information & Referral materials and to celebrate together before the holiday season. Advocates Personal Care will provide bagels, coffee, and hot cider. We will meet on Tuesday, October 18th, 2022 from 9:30am – 11am (to allow social time with official meeting at 10am) at Coxhall Gardens in Carmel, IN. Coxhall Gardens is located at 11677 Towne Rd, Carmel, IN 46032. We will meet outside in the Children’s Pavillion. To ensure we have enough bagels & beverages, please email Advocates’ Outreach Consultant, Jeremy Warriner at jwarriner@advocatescare.com to confirm your intent to attend.

We will return to our normal virtual format in November, meeting over Zoom at 10am on Thursday, November 17th, 2022. To join the November meeting, please use the following link:

https://us02web.zoom.us/j/84568362752?pwd=TEhXZDlQbGV1dkhTNFRLSjY0dFo1QT09

Meeting ID: 845 6836 2752

Passcode: 505049

Disabilities & Conditions of Aging, August 25th, 2022

On Thursday, August 25th, 2022, Advocates Personal Care hosted the third meeting of the new Disabilities and Conditions of Aging Network. This month our agenda featured an “in-depth” introduction of PrimeLife Enrichment, Inc followed by a speed round of introductions, updates, and organic Question & Answer based conversation. The goal of the Disabilities and Conditions of Aging Network is to regularly connect providers and individuals who make up the community of People with Disabilities, which includes Conditions of Aging, to better serve those whose self-defined independence we are here to support.

Excited by the number of organizations that joined in this month, I neglected to start the recording until after my opening introduction, and at the end of our host Inna Pecar’s intro, President of both Advocates Home Health Care & Kid’s First Adoption. The rest of the meeting, including Julie Barnes’ introduction of PrimeLife Enrichment’s services can be viewed here:

The next meeting of the Disabilities & Conditions of Aging Network will be held via zoom on Thursday, September 22nd, 2022, at 10am. Please reach out to jwarriner@advocatescare.com if you would like dedicated time on the agenda. To join the 9/22 network session, simply click on the link below:

Join Zoom Meeting

https://us02web.zoom.us/j/83051756234?pwd=aFEwUEV1Zk5obXdtOU84U3hpbXF1Zz09

Meeting ID: 830 5175 6234

Passcode: 973204

Disabilities & Conditions of Aging Network – July 2022

On Thursday, July 28th, 2022, Advocates Personal Care hosted the second meeting of the new Disabilities and Conditions of Aging Network. With a loose agenda, topics ranged from education for children with disabilities to managing assets to meet eligibility for support services as conditions of aging present themselves, and several others in between. The goal of the Disabilities and Conditions of Aging Network is to regularly connect providers and individuals who make up the community of People with Disabilities, which includes Conditions of Aging, to better serve those whose self-defined independence we are here to support. Due to both technical difficulties and (full disclosure) a bit of covid related confusion, we were only able to capture a 45-minute excerpt of the meeting…

The next meeting will be held via zoom on Thursday, August 25th, at 10am. and can be accessed via the following link (please feel free to share with any who might be interested):

https://us02web.zoom.us/j/88002895785?pwd=NXhsTWlvL0NHTGgwME9SUm51U0F4UT09

Meeting ID: 880 0289 5785

Passcode: 665711

If you would like time on the August agenda to share your activities, celebrations, or community news and concerns with the network, please email jeremy@walkingspirit.org before 4pm on Wednesday, August 24th. If you have referrals for Advocates Personal Care, please send those to jwarriner@advocatescare.com.

Consequences of Overturning Roe for People with Disabilities

During a recent rehearsal for an upcoming international webinar on Disability Advocacy Leadership, the following spontaneous conversation took place. While the US Supreme Court’s decision to strip women of the right to an abortion is not a topic on the agenda for the webinar, the issue was raised by the panelist from India, who pointed out the potential international ramifications of the court’s decision. This led to a deeper discussion about the potential impact of this decision on the rights of People with Disabilities within the United States. Did the court even consider this as they made their ruling? People in the United States now have to advocate for at least one amendment, possibly more, to effect positive change that will protect and preserve the “Land of the Free”…

While this topic is not on the agenda for the upcoming international Disability Advocacy Leadership Webinar, the video above gives a glimpse of how the panelists interact. To see, hear, and learn more, please join us next Thursday, July 7th, at 10am Eastern US time!

“Hope is not passive; hope is taking action. And hope always comes from the people”

Greta Thunberg

Disability Advocacy Leadership Webinar

July 7, 10 AM Eastern US Time, Zoom Meeting

Hosted By the Rotary Disability Advisers

https://us02web.zoom.us/j/84661976390?pwd=ZEt2Y2N5RXpSTHgxSGpzM1BmTjcrQT09

Meeting ID: 846 6197 6390

Passcode: Advocacy

World Disability Matters – Episodes 3, 4, & 5; Trauma, Advocacy, and Sensory Disabilities

As a result of the rise of violence from the war in Ukraine to mass shootings in schools, grocery stores, and public places across the United States, and natural disasters across the globe Episode 3 of World Disability Matters is a spontaneous conversation about how trauma from violence creates people with disabilities and adds new complexities to the lives of people with pre-existing disabilities…

https://www.buzzsprout.com/1977572/10661461

On Episode 4 of World Disability Matters, my co-host & name brother from South Africa, Rotarian Jeremy Opperman, is in the hotseat talking candidly about his life adapting to vision loss and becoming an advocate for all People with Disabilities…

https://www.buzzsprout.com/1977572/10734900

You can learn more about Jeremy’s Consulting & Advocacy work through his organization, Disability Desk at his website www.disabilitydesk.co.za

On Episode 5 of World Disability Matters, we speak with Rotarian Jackie Njeru from Kenya. Jackie took on the mantle of Disability Rights Advocate when she learned to speak up for her son’s needs as he lost his hearing at age 2…

https://www.buzzsprout.com/1977572/10760190

Please join Jeremy Opperman and I on July 7th at 10 am for an International Webinar about Advocacy from a global Disability and Human Rights Lens, hosted by the Rotary Disability Advisors Group. My name brother and Co-Host will serve as moderator, while I have the honor of being the unofficial representative from the United States on the panel. My fellow panelists are Luis Mauch, Accessibility Advocate, Co-founder of Mais Diferenças e Ktalise Tecnologias, Brazil; Jackie Njeru, Deaf Rights Advocate, President-Elect Rotary Club of Mililani, Kenya; Nilesh Singit, Disability Rights Advocate, Consultant, and Researcher, India; & Dr. Jacqueline Wilson, Medical Advocate CEO, Overseas Medical Treatment Office, Egypt!

Watch for upcoming introductory podcasts with Luis, Jacqueline, and Nilesh, and be sure to join over zoom for the Disability Advocacy Leadership Webinar on July 7th!

Join Zoom Meeting on July 7th at 10am Eastern Time:

https://us02web.zoom.us/j/84661976390?pwd=ZEt2Y2N5RXpSTHgxSGpzM1BmTjcrQT09

Meeting ID: 846 6197 6390

Passcode: ADVOCACY

Disabilities & Conditions of Aging Network

Yesterday, with the support of my client, Advocates Personal Care, we launched the new Disabilities & Conditions of Aging Network! A zoom-based network focused on improving the lives of People with Disabilities &/or Conditions of Aging in central Indiana and beyond, through improved consistent communication, coordination, and celebration amongst those who support these communities. Here is the recording of our first meeting.

Our next meeting will be held over zoom on Thursday, July 28th, at 9:30am and can be accessed with this link:

https://us02web.zoom.us/j/86571472903?pwd=kQjP0z9LvTY6SUokBBrVLtxG5JRmco.1

Meeting ID: 865 7147 2903

Passcode: 949696

Diversity, Equity, & Inclusion from a Disability Lens

Today I had the honor to be the guest speaker at the May 2022 meeting of the Diversity Roundtable of Central Indiana. The topic was Diversity, Equity, & Inclusion from a Disability Lens which expands on the revelation that disabilities, which are tremendously diverse in and of themselves, do not discriminate. Disabilities cross all demographics…cultural, racial, economic, etc. People with Disabilities, when viewed as a global culture, share a history of suspicion, oppression, and injustice dating back to before we began to measure time, and makes up the largest minority in the world.

The description of the event can still be found here:

Diversity, Equity, & Inclusion from a Disability Lens – Member Event By Diversity Roundtable of Central Indiana (drtci.org)

The following is just a short synopsis of the high points:

In the United States, People with Disabilities make up a quarter of the population and growing, as the overall population is aging and acquiring more disabilities every day. Globally People with Disabilities are growing at an exponential rate as people suffer physical, mental, and emotional trauma from violent events like natural disasters, school shootings, war, and so on. In Ukraine, People with Disabilities are acquiring additional disabilities while new People with Disabilities are also created around them from Russia’s violence. People with disabilities are being left behind on the evacuation trails.

If we focus on building a world that is inclusive of People with Disabilities, we foster opportunities for connection amongst a naturally diverse population. We create environments where People with Disabilities are able to adapt to their medical challenges through the use of assistive technology and reasonable accommodations and are not disabled by a society that isn’t designed for them. If we foster inclusive communities then we promote equity by ensuring that people with disabilities are not only welcome at the table but are in an equitable position to lead the table.

Due to a technical difficulty, we were only able to capture about 25 minutes of the presentation on video. Unfortunately, this did not include the portion of the presentation that covered my origin and journey as a Person with a Disability. We did send out the presentation in PDF form afterwards, but this does not include the videos that I built into the presentation to demonstrate both how my legs work and what can be achieved when you stop saying “I can’t” or listening to the people who say, “you can’t” and start asking “how can I…”? So, I’ve posted them here:

To see the final 25 minute segment of todays presentation, which includes some valuable information and resources, watch this video:

World Disability Matters, Episode II

The next episode of the Podcast Word Disability Matters is now available. The podcast, which is offered by the Rotary Disability Advisers Group, is hosted by Rotarians Jeremy Opperman, South Africa and me, Jeremy Warriner, USA. This episode features an interview with District Governor Elect, D 7190 Denise DiNoto. She was the first wheelchair using student to complete the Rotary Youth Exchanged program when she was in Australia. She discusses accessibility and inclusion for People with Disabilities. She also believes that Rotary should only award grants to programs that include accessibility and inclusion. Please listen to the full episode here… https://www.buzzsprout.com/1977572/10584924